Saturday was a stunning day in the Dandenong Ranges, and I spent a beautiful afternoon photographing the wedding of Mark and Tracy. After the ceremony, we meandered around the R J Hamer Forest Arboretum for some portrait time.
My favourite thing about this couple was the warm and loving friendship they share, with each highlighting kindness and patience as traits they held dear in the other. Such a beautiful day, where they were surrounded by joyful family and friends, it was a wonderful beginning to their marriage.
You'll find more information on Curiouser wedding photography here, with a limited number of wedding bookings available each year, both in the Dandenong Ranges and afar.
Northwest America and our adventuring crew
I find myself still settling back into being at home after our big trip away (check out our photos along the way here: https://instagram.com/explore/tags/quarmbysusanorthwest/ ). It's been about 10 days since we returned, and we were away for 22 days - not that long really. But it was a full three weeks! Life at home is full and busy but in a rather different style.
One thing I love is that we are raising little travellers. It's a deliberate choice, and does mean that other we prioritise things differently from many families, but it's something I am grateful for. And am reminding myself of, as I look at our broken oven in the kitchen where I type this ;) We're still lucky that it's possible, absolutely, and it requires determination. One car, not two. Waiting and budgeting for that new oven. Planning and tracking and dreaming. We choose travel, and I love that.
When we were returning through Australian border control, Cedar was telling the customs officer that his backpack was from Japan. But that we just came from America. They do find it exciting, but it's also a repeating theme of their life experience. While they each had the same challenges and occasional meltdowns when travelling as they do at home, all of the kids found things to like and enjoy in the different places we visited. And I hope we are also teaching them that some family activities are motivated by us, the parents, and what we would like to experience. (I may have had to explain that to them a few times when they all wanted to just stay in playing Minecraft...)
It feels like I'm writing with a slightly melancholy tone, though it's just that I have a lot of brain clutter going on... pulling out specific thoughts is like putting my hand into a bowl of spaghetti to retrieve a lost tooth. Or something like that, anyway. The 'back to normal' transition, still, perhaps, with a normal that is fairly chaotic at the best of times, LOL.
So, our Northwest trip, the quick overview version: We flew from Melbourne, via Auckland to San Francisco, where we stayed at Fisherman's Wharf. After four days we took an overnight train to Portland, Oregon. Cedar thought the sleeper train was the best thing ever! He was so excited. Unfortunately Amtrak lost our luggage, so when we arrived at Portland we had to dash out to buy underwear for everyone and a few essential changes of clothes. Our Portland hotel had given us a huge room upgrade, though, so that was amazing.
After a few days in Portland, we took the train to Vancouver, BC (Canada). Arriving in Canada in almost the middle of the night was interesting... Poor Cedar had to be woken up to go through customs in the train station. Vancouver was a full three days, and then an early departure to catch the train again. This time to Seattle, Washington, where we spent the next 6 days. Finally, we flew back to San Francisco for one last day - organising ourselves and last minute souvenirs - before flying home. The kids loved flying, as well. Independent entertainment control was probably the highlight there ;)
Things we learned along the way:
One thing I love is that we are raising little travellers. It's a deliberate choice, and does mean that other we prioritise things differently from many families, but it's something I am grateful for. And am reminding myself of, as I look at our broken oven in the kitchen where I type this ;) We're still lucky that it's possible, absolutely, and it requires determination. One car, not two. Waiting and budgeting for that new oven. Planning and tracking and dreaming. We choose travel, and I love that.
When we were returning through Australian border control, Cedar was telling the customs officer that his backpack was from Japan. But that we just came from America. They do find it exciting, but it's also a repeating theme of their life experience. While they each had the same challenges and occasional meltdowns when travelling as they do at home, all of the kids found things to like and enjoy in the different places we visited. And I hope we are also teaching them that some family activities are motivated by us, the parents, and what we would like to experience. (I may have had to explain that to them a few times when they all wanted to just stay in playing Minecraft...)
It feels like I'm writing with a slightly melancholy tone, though it's just that I have a lot of brain clutter going on... pulling out specific thoughts is like putting my hand into a bowl of spaghetti to retrieve a lost tooth. Or something like that, anyway. The 'back to normal' transition, still, perhaps, with a normal that is fairly chaotic at the best of times, LOL.
So, our Northwest trip, the quick overview version: We flew from Melbourne, via Auckland to San Francisco, where we stayed at Fisherman's Wharf. After four days we took an overnight train to Portland, Oregon. Cedar thought the sleeper train was the best thing ever! He was so excited. Unfortunately Amtrak lost our luggage, so when we arrived at Portland we had to dash out to buy underwear for everyone and a few essential changes of clothes. Our Portland hotel had given us a huge room upgrade, though, so that was amazing.
After a few days in Portland, we took the train to Vancouver, BC (Canada). Arriving in Canada in almost the middle of the night was interesting... Poor Cedar had to be woken up to go through customs in the train station. Vancouver was a full three days, and then an early departure to catch the train again. This time to Seattle, Washington, where we spent the next 6 days. Finally, we flew back to San Francisco for one last day - organising ourselves and last minute souvenirs - before flying home. The kids loved flying, as well. Independent entertainment control was probably the highlight there ;)
Things we learned along the way:
- People will still stop and offer assistance if you seem to look confused while trying to find street signs. So kind :)
- Pork Belly makes a pretty spectacular cubano. SO yum.
- Good coffee can be found in America. Really. (And by 'good' I mean a strong espresso / latte to our personal taste). You just have to be more deliberate / discerning about what you are looking for than in Melbourne. Though I am pretty fussy anywhere, so I'm used to that ;)
- Exact coin change for a bus ticket is a lot more tricky when you have to buy five of them. Sorry Vancouver, that didn't really work for us.
- Raccoons are really cute.
- A submarine tour is really not a great place for a strong / heavy 10 year old to have a meltdown. Especially if they run to a schedule.
- Alaska Airlines were awesome. Even though it was our shortest flight, the kids were invited into the cockpit and the flight attendant gave them all "wings" pins to wear. Plus everyone was super nice.
- It's fun to make friends in new places. That was a real highlight for all the kids.
Two little raspberries - Twin newborn photography
I love baby photos, especially slice-of-life style pics at home, or gorgeous portrait shots. But nothing beats the newbie newness of hospital photos for me, babies change so quickly and the time spent after their birth is a squishy evolution between growing babies, and babies growing you.
Meet Scarlett and Winter. Super sweeties.
Sweetie pie, a new little friend
This is Charli, a gorgeous little girl who was born last week to a lovely friend of mine :)
I love taking squishy newborn still-in-hospital new photos, snapshots for loved ones, there's nothing quite like these first few days!
I love taking squishy newborn still-in-hospital new photos, snapshots for loved ones, there's nothing quite like these first few days!
The part and the whole of our #autism family
So, things were up in the air for our family for about 6 weeks or so regarding this potential huge change. There was waiting. Exploring. Investigating options. Weighing benefits. Cognitive testing. And my mind racing, worrying, analysing, as we gradually came to the crunch of making the decision about Ash's schooling.
On the one hand, Ash's emotions were telling me that he needed something more than what he currently has. Whether that is about support, therapies or simply insight, we needed to think about what was best for him. So, it was recommended that we consider this particular school - a limited time offer, as he is at the upper age limit of enrolment already, being in year 4 this year.
Ash and I did a school tour, and he did two trial mornings in the classroom there. He liked it. He got along well with the other kids in the class. They liked him. The school suggested he might begin full time in just a few weeks. We had one full day trial left to complete before making the final decision.
Then Cedar got chicken pox (mildly, as he is immunised), and I let them know that Ash had been exposed. This postponed the full day trial for a couple of weeks. And in the meantime, my brain kept ticking over a million miles a minute. I had a meeting with the principal at the kids' current school. I had conversations with another school parent who has a great understanding of Autism spectrum kids. I had a conversation with my daughter's psychologist. I had a conversation with Ash's psychologist. I did research. Ben and I discussed the pros and cons, the costs and benefits - both literally, and to each of us, as well as to Ash (primarily, loss of his aide support). I wrote lists. Talked it out, juggled my thoughts, watched my kids.
And then I sat in a cafe in a shopping centre, with a coffee next to me, and wrote two emails to the specialist school - one to the principal and one to the teacher. Ash would not be changing schools. There was no need to complete the trial days. Their information has been invaluable (and I've since had another conversation with them getting more tips and advice). But our family is made up of more than one 9 year old boy. He is not even the only one on the Autism Spectrum. And, as completely as I love him and want to help him, we are one whole family unit.
You see, I'd been on a rollercoaster of decision making, and things were not crystal clear or self-evident as to what would be the best choice for Ash. But it was like I had blinkers on. I was looking at Ash as an individual, and what might be ideal for him on his own. I knew it would have a high personal cost to me if he changed schools, but I felt that I, as his mother, could sacrifice 15 months of my life for the benefit of my beautiful son.
And then I stopped. Ash is not an only child. We are not a family unit of 2 or 3. There are five of us here. It's not *just* about him, and it's not *just* about me. Sienna is 11.5 years old, a tween girl with Aspergers and ADHD, going into high school next year. How would it affect her if the pressure was on each morning to get ready early, quickly, quickly, or Ash will be late for his school a half hour drive away? How would it affect her if I am unavailable for 2 hours per day? If I feel too frustrated and tired by the juggling act to be a listening ear? As well as practical details, will I be able to take her to her high school transition program, an integration program for additional needs, if I also have to drive Ash in the opposite direction?
Cedar is 5 years old. He'll be 6 in five weeks, and he is in his first year of primary school. Next year he will be in year 1, and if Ash changed schools Cedar would be rushed out of the car, expected to walk in to school on his own, 15 minutes early every day. Is this really a good time for my energies to be so devoted to one child? With no guarantees? As well as all that, while weighing up these decisions our 1 year old dog Sparrow got very sick. She had a sudden and extreme bacterial infection, and I spent a week back and forth to the vet, getting meds into her and sitting next to her almost constantly.
I realised there was also the literal cost to our entire family - a sudden vet bill would be impossible to pay if I tied up all our available family income in private school fees for one child. And with my time commitment to driving 2 hours a day, I would hardly be able to earn any income to help pay for it. Even for Ash's sake, what about the school fulfilled his needs? Would it be worth it? What would happen at the end of 5 terms when he had to return to mainstream school, but no longer had aide support? And would this help when 5 terms later he had to transition again - a third time - to high school?
I know this seems like a big old brain dump, and it is - (epic, in fact, I'm impressed if anyone has read this far!) but it is still only a fraction of the thought rollercoaster I was riding for those 6 weeks. I just wanted to record the conflict, the unknown and unseen by most, that I know so many parents and families go through when weighing up decisions they need to make for their children. Professionals might tell you they think something will benefit your child, and our instinct is to jump in with both feet - yes, of course, let's do that! But even the loveliest professionals are not part of YOUR family, and they don't know the whole story of your everyday life. No one is as well equipped to make these decisions as you are.
And there might be parts of the decisions you have to make over the years that are about you. Self-care, some call it, or your needs as an individual and not just a mother (or father). We might be reluctant to add these to the scales, on one side or the other, but really, we must. As their primary carers, our wellbeing - or not - at the end of the day is likely to have a stronger effect on our kids than we know. Your happiness has weight. You matter too.
Even though we decided not to make this big change, for Ash to move schools, it was not a decision not to change. We decided to take what we have learnt from the specialist school, take the conversations I had with school representatives and other professionals, and make smaller changes.
Our action plan now is:
It's all a learning curve, after all.
On the one hand, Ash's emotions were telling me that he needed something more than what he currently has. Whether that is about support, therapies or simply insight, we needed to think about what was best for him. So, it was recommended that we consider this particular school - a limited time offer, as he is at the upper age limit of enrolment already, being in year 4 this year.
Ash and I did a school tour, and he did two trial mornings in the classroom there. He liked it. He got along well with the other kids in the class. They liked him. The school suggested he might begin full time in just a few weeks. We had one full day trial left to complete before making the final decision.
Then Cedar got chicken pox (mildly, as he is immunised), and I let them know that Ash had been exposed. This postponed the full day trial for a couple of weeks. And in the meantime, my brain kept ticking over a million miles a minute. I had a meeting with the principal at the kids' current school. I had conversations with another school parent who has a great understanding of Autism spectrum kids. I had a conversation with my daughter's psychologist. I had a conversation with Ash's psychologist. I did research. Ben and I discussed the pros and cons, the costs and benefits - both literally, and to each of us, as well as to Ash (primarily, loss of his aide support). I wrote lists. Talked it out, juggled my thoughts, watched my kids.
And then I sat in a cafe in a shopping centre, with a coffee next to me, and wrote two emails to the specialist school - one to the principal and one to the teacher. Ash would not be changing schools. There was no need to complete the trial days. Their information has been invaluable (and I've since had another conversation with them getting more tips and advice). But our family is made up of more than one 9 year old boy. He is not even the only one on the Autism Spectrum. And, as completely as I love him and want to help him, we are one whole family unit.
You see, I'd been on a rollercoaster of decision making, and things were not crystal clear or self-evident as to what would be the best choice for Ash. But it was like I had blinkers on. I was looking at Ash as an individual, and what might be ideal for him on his own. I knew it would have a high personal cost to me if he changed schools, but I felt that I, as his mother, could sacrifice 15 months of my life for the benefit of my beautiful son.
And then I stopped. Ash is not an only child. We are not a family unit of 2 or 3. There are five of us here. It's not *just* about him, and it's not *just* about me. Sienna is 11.5 years old, a tween girl with Aspergers and ADHD, going into high school next year. How would it affect her if the pressure was on each morning to get ready early, quickly, quickly, or Ash will be late for his school a half hour drive away? How would it affect her if I am unavailable for 2 hours per day? If I feel too frustrated and tired by the juggling act to be a listening ear? As well as practical details, will I be able to take her to her high school transition program, an integration program for additional needs, if I also have to drive Ash in the opposite direction?
Cedar is 5 years old. He'll be 6 in five weeks, and he is in his first year of primary school. Next year he will be in year 1, and if Ash changed schools Cedar would be rushed out of the car, expected to walk in to school on his own, 15 minutes early every day. Is this really a good time for my energies to be so devoted to one child? With no guarantees? As well as all that, while weighing up these decisions our 1 year old dog Sparrow got very sick. She had a sudden and extreme bacterial infection, and I spent a week back and forth to the vet, getting meds into her and sitting next to her almost constantly.
I realised there was also the literal cost to our entire family - a sudden vet bill would be impossible to pay if I tied up all our available family income in private school fees for one child. And with my time commitment to driving 2 hours a day, I would hardly be able to earn any income to help pay for it. Even for Ash's sake, what about the school fulfilled his needs? Would it be worth it? What would happen at the end of 5 terms when he had to return to mainstream school, but no longer had aide support? And would this help when 5 terms later he had to transition again - a third time - to high school?
I know this seems like a big old brain dump, and it is - (epic, in fact, I'm impressed if anyone has read this far!) but it is still only a fraction of the thought rollercoaster I was riding for those 6 weeks. I just wanted to record the conflict, the unknown and unseen by most, that I know so many parents and families go through when weighing up decisions they need to make for their children. Professionals might tell you they think something will benefit your child, and our instinct is to jump in with both feet - yes, of course, let's do that! But even the loveliest professionals are not part of YOUR family, and they don't know the whole story of your everyday life. No one is as well equipped to make these decisions as you are.
And there might be parts of the decisions you have to make over the years that are about you. Self-care, some call it, or your needs as an individual and not just a mother (or father). We might be reluctant to add these to the scales, on one side or the other, but really, we must. As their primary carers, our wellbeing - or not - at the end of the day is likely to have a stronger effect on our kids than we know. Your happiness has weight. You matter too.
Even though we decided not to make this big change, for Ash to move schools, it was not a decision not to change. We decided to take what we have learnt from the specialist school, take the conversations I had with school representatives and other professionals, and make smaller changes.
Our action plan now is:
- Weekly 'excursions' to reward (and incentivize) Ash for attending school every day of the week, something that is hard for him
- The development of a Sensory room at school and a strategy for including more sensory input into his day.
It's all a learning curve, after all.
Today, bewildered - #autism and the boy
This boy... so incredibly lovable, he has my head spinning at the moment. Today was a particularly epic day. The kind that hindsight would advice to skip, stay in bed, don't even try. But who knows that, in the morning, right?
So, aside from the (not uncommon) reluctance to get out of bed and face school, the 75 minute separation process once I did get him there (all three kids that constant five minutes late), the skeleton onesie pyjamas being worn at school all day and the kicking, fighting, biting, beside-himself meltdown after the final bell this afternoon... aside from that, there's this feeling. The word that fits, I think most accurately, is bewildered.
I know this kid, and I know him really well. But I still find myself bewildered, wondering one day (yesterday to be precise) if a certain pattern will be our new status quo, and then flipping that back again the very next. It's not about the separation anxiety, at least, not specifically. And not about the meltdown - as amplified as his response was, there was a catalyst there.
I think the hardest thing to get my head around is the inconsistency. I am bewildered by what is different from one morning to the next. By the need to make decisions about what is best for this amazing, complex 9 year old boy, with conflicting evidence from day to day, week to week, about what those best things might be. He can be such a joy to have around, and he adores me - his anchor, his mum - like nothing else in this world. But these things won't give him an education. Hugs and teddies aren't going to make him friends. Social thinking can't be learned from one person alone.
At the moment, we are part way through the intake process at Cheshire school, a transitional school for kids with social, emotional and behavioural difficulties, for Ash, as recommended by his psychologist. It's an investigative process, where actual enrolment isn't decided until a certain stage of the process, and we are not there quite yet. We're part way through. So, there have been a lot of considerations to think about, and the possibility of big change ahead. But the possibility of it not happening is there too. It's up in the air. Good things on both sides - the change, or not to change. The private, specialist school, the increased transitions, the hectic schedule for me as the driver (an extra two hours of driving a day), but the chance that this is what will work for him. And the possibility that it won't.
The principal / psychologist from the school observed Ash in his current school and classroom the other day, and we spoke a little later that afternoon. There were a lot of good points, and I agree fully with them all - he engages well with his peers, with assistance can work on the required tasks, seems generally liked by others, doesn't seem anxious within the classroom space. She could see a few things we'd spoken about as well, but the areas of concern were more subtle. These are all true things. I started to wonder if maybe this new school idea won't be the necessary goal. I hope we can avoid the big change, despite the potential benefits, for the sake of appreciating the things Ash likes about where he is at, things he would have to sacrifice to change schools. And, to be brutally honest, save the money, and driving.
But then, today, pyjamas, the morning refusal again, and the chair-tossing, workbook-ripping, heart-breaking meltdown over the end of the day, over time running out, and him not being able to do his show and tell after all. Just a final straw, on a hard day. The red beast took over, he says, and while it took half an hour to come back to a calm place, five minutes after we got home he was all hugs and apology. He's a beautiful boy. And I can easily see it. Tackling life is just a bit too much to ask sometimes.
So, aside from the (not uncommon) reluctance to get out of bed and face school, the 75 minute separation process once I did get him there (all three kids that constant five minutes late), the skeleton onesie pyjamas being worn at school all day and the kicking, fighting, biting, beside-himself meltdown after the final bell this afternoon... aside from that, there's this feeling. The word that fits, I think most accurately, is bewildered.
I know this kid, and I know him really well. But I still find myself bewildered, wondering one day (yesterday to be precise) if a certain pattern will be our new status quo, and then flipping that back again the very next. It's not about the separation anxiety, at least, not specifically. And not about the meltdown - as amplified as his response was, there was a catalyst there.
I think the hardest thing to get my head around is the inconsistency. I am bewildered by what is different from one morning to the next. By the need to make decisions about what is best for this amazing, complex 9 year old boy, with conflicting evidence from day to day, week to week, about what those best things might be. He can be such a joy to have around, and he adores me - his anchor, his mum - like nothing else in this world. But these things won't give him an education. Hugs and teddies aren't going to make him friends. Social thinking can't be learned from one person alone.
At the moment, we are part way through the intake process at Cheshire school, a transitional school for kids with social, emotional and behavioural difficulties, for Ash, as recommended by his psychologist. It's an investigative process, where actual enrolment isn't decided until a certain stage of the process, and we are not there quite yet. We're part way through. So, there have been a lot of considerations to think about, and the possibility of big change ahead. But the possibility of it not happening is there too. It's up in the air. Good things on both sides - the change, or not to change. The private, specialist school, the increased transitions, the hectic schedule for me as the driver (an extra two hours of driving a day), but the chance that this is what will work for him. And the possibility that it won't.
The principal / psychologist from the school observed Ash in his current school and classroom the other day, and we spoke a little later that afternoon. There were a lot of good points, and I agree fully with them all - he engages well with his peers, with assistance can work on the required tasks, seems generally liked by others, doesn't seem anxious within the classroom space. She could see a few things we'd spoken about as well, but the areas of concern were more subtle. These are all true things. I started to wonder if maybe this new school idea won't be the necessary goal. I hope we can avoid the big change, despite the potential benefits, for the sake of appreciating the things Ash likes about where he is at, things he would have to sacrifice to change schools. And, to be brutally honest, save the money, and driving.
But then, today, pyjamas, the morning refusal again, and the chair-tossing, workbook-ripping, heart-breaking meltdown over the end of the day, over time running out, and him not being able to do his show and tell after all. Just a final straw, on a hard day. The red beast took over, he says, and while it took half an hour to come back to a calm place, five minutes after we got home he was all hugs and apology. He's a beautiful boy. And I can easily see it. Tackling life is just a bit too much to ask sometimes.
Bec's Baby Shower - Vintage Glam styling gorgeousness!
Twin girls are on their way, and we put on a beautiful party to celebrate for my lovely cousin. Her bestie and I organised the party, and I got to do my favourite parts of a party - styling and decoration :)
So, a couple of weeks ago I took the kids over the border once more, off to Adelaide with a car full of silver trays, white tablecloths, paper flowers and vintage books. I'd spent my spare time in the weeks before making tassle garlands, a lace garland, designing activity cards and creating paper flowers. We stayed with my little sister and nephew, giving the kids a fun end to their school holidays running amok with their cousin for a day or two before the party! I took the chance to do some baking with my sister, using our family favourite chocolate cake recipe, and trying out her thermomix when making the cinnamon buttercream icing.
When setting up Bec's space, it was great that the fairy lights and tissue paper balls still hung beneath the decking roof, left from her wedding party last year. We added a range of umbrellas and parasols, to suit the 'baby shower' theme, in a mix of white and magenta (our party theme colours). I loved this, they looked so whimsical and gorgeous! Across the fairy lights, I strung the lace semi-circle garland that I'd made diagonally, and added the tassle garland around the edges of the decking area.
On the morning of the baby shower, tables were set up and all covered, including the permanent BBQ, with white tablecloths and fabric. Silver trays, cut glass, burlap strips, fresh ivy, vases of fresh magenta and white flowers, potted colour, gilt frames and vintage books were all placed around the tables, including two activity areas. But the food table was my favourite, everything book paper, magenta and flowers, it was so pretty. It looked even more magical in real life.
The party was really fun and happy, with our make shift photo booth (wall) and a gorgeous array of food and drink to share. I even hopped in front of the camera for a few myself (the evidence is below). Bec felt adored, everyone loved the styling and look of it all, and there are some very fun photos to keep! I call that a win :)
For guests and friends, the rest of the photos can be seen (and web-quality copies downloaded) at http://curiouser.shootproof.com/becsbabyshower
Family photography and autism, part two: Exercising delight
In my last blog post, I wrote about my belief in the importance of family photography, more specifically for the family with autism 'in the mix', meaning with a family member on the autism spectrum (ASD, or ASC). These are my personal feelings, about something that just makes sense to me, not about any studies or academia or whatnot. This is something that is valuable to me. So, in the first part of this blog series I focused on the value for the visual learner, the autistic person. Read more about that here. But wait, there's more... (I've got a busy little brain when it comes to this topic!)
Spectrum kids often struggle – socially, emotionally, with sensory processing, and so on – with their everyday life. An average school day can be monumentally challenging for them, and overwhelming in all different ways. Their family and home is, even more than for most kids, their safe place. Sometimes, as other mums will know, being a safe place doesn't always mean we get their best behaviour! But we are their haven, and often their translators, in a world of overwhelm and uncertainty. So the bond, the need, is just woven that little bit more tightly, keeping us - as their anchor - nice and strongly secured.
Firstly, this is a precious relationship, a unique relationship, with the beautiful and treasured connection between parent and child, between family members, enhanced by the intensity of the autism experience. From going through the diagnostic process, to the way we look at the world through their eyes, and filter the world for them when we can, there is an added layer to our family life that can be brilliantly rewarding, and supremely difficult at times. This is a relationship that deserves documenting, capturing and remembering.
That this is valuable, worth capturing, enjoying and celebrating, is ever true of these intricate family ties, which are always 'limited edition' and everchanging in every family. And so, this is ever more true of any family with special challenges in their lives.
Secondly, with these additionally layered family ties, these bonds can be even harder to cherish in the everyday. Where parents may be carers, therapists and advocates as well as mother or father; where the behaviours they work through may involve aggression, non-communication, self-destruction and anxiety; where the worries and concern stretch years into the future as well as each hour of the day... these relationships can, at times, be exercises in endurance. Not that there aren't moments of gratitude, reward and delight - and those are wonderful times – but there are certainly seasons where it is hard to stop coping and celebrate. Honouring these relationships is an exercise in optimism and gladness, and a deliberate focus on what is uniquely brilliant about our particularly different kids. Sometimes we're just too tired.
Taking that time to organise, lead up to and participate in a family photography session is beautiful, and meaningful, and a gorgeous testament to the strength you draw on every day of your life. It's a celebration of the individuals that make up your stunningly unique family, and a celebration of the love you share. Because of it all, despite it all, sometimes not and then twice as much again. This is real, this is extraordinary, this is powerful. This is you.
Family photography and autism, part one: Pictures of love
It is my personal belief that it is even more important for a family with autism in the mix to have family photography, even more so than an apparently typical family. Don't get me wrong, I do always feel that it is so valuable and meaningful for families to celebrate their milestones, their togetherness and their beautiful connections. I really do. But my reason for that statement is partly about the person/people on the spectrum, and partly about the experience of parenting with autism in the mix.
Today,
I'm just going to talk about the value for the autistic person. Let's
just assume in this article that we're talking about a child or
youth. It applies to adults as well, and it actually applies to a lot
of non-autistic, visually oriented people as well, but in this
instance I will use the example of an autistic child. I am also
thinking about my own children when I write, so there's my disclaimer
;)
Basically,
with autism, a person's visual processing speed is often vastly
superior to their auditory comprehension. Temple
Grandin explains how she thinks in pictures. My middle child,
Ash, for an example from my own family, had a visual processing speed
at the 88th percentile of his age when he was tested at 5
years old. His auditory processing was at the 22nd
percentile. That's a large disparity, yes, which is often part of the
diagnostic screening in itself. But it's the real life application
that is the thing.
If
someone says something to Ash, it is processed far slower than a
typical child of his age. Processing time is really important, and if
a lot of information is spoken at once then some of that information
will invariably fall through the cracks, because his auditory
processing skills are not at the level that you might expect.
However, if someone shows him something, it is processed far more
quickly than a typical child. Visual patterns, systems, instructions,
concepts - everything that goes in to his brain through visual means
is easier to process, understand and respond to, or take on board.
Being
told 'I love you' is beautiful, and true, and supportive. In the
moment we say it, it is a meaningful, connective gesture. It is a
genuinely lovely gesture, and one which we repeat, often.
Being
able to see 'I love you' visually, a gorgeous image of that bond you
share, a photograph that becomes woven into the landscape of their
everyday, that is beautiful, and true, and strong. That is a visual
foundation of what home, and family, really mean to them. With no
words needed, that 'I love you' moment reminds and anchors them each
and every day, and that is powerful.
Autism, motherhood and photography
Sienna sums us up in magnetic poetry (children's version) |
Just
over a year and a half ago, I realised what my passion was. Is. Could
be. It came to me suddenly, and clearly, and since then has
constantly been percolating in the back of my mind. It's not
something wildly different, for me, but rather something that has
been gaining clarity progressively over the last couple of years. And
something that is deeply important to me, both as a mother and a
photographer.
The
thing is, I am a professional photographer. It's taken me a long time
shooting to get to this place, and I've technically been here for a
few years now. While I have dabbled in fashion, commercial, nature,
and I've enjoyed weddings as well, I feel that I am primarily a
family and children portrait photographer. I really love it. Even
before becoming a mother, I was always most excited by photographing
children – so unpredictable, challenging and joyful.
The other thing is, I am a mother. I was a photographer first, but I've been a mum for over 11 years now. And for more than 6 of those years, I've been a particular type of mum, I guess you could say. An autism mother. I've written about my family before, and they are uniquely amazing and fascinating to me. Sometimes challenging, particularly when transitions or social demands push them past their comfort zone.
Sometimes
I feel I need to clarify, I don't have my head in the sand either.
Things aren't always easy, but they could be a lot harder too. Today it took an hour before my 9 year old would let me
leave him at school. This morning my 11 year old wanted to curl up in
the fetal position in the boot of our car because her drawing wasn't
perfect, I had to hold her back so that I could take her into her
regular appointment with her psychologist. My 5 year old screamed
- and I mean really screamed - whenever the sunshine came through his side of the car during our
drive home. This is all pretty typical stuff for our everyday life on
the spectrum. But that's ok. We have moments. We move on. And I think
they're overall pretty brilliant people.
And from here comes my clarity...
My
heart feels most rewarded by the surge of love and meaning that I get
from offering family photography to other families with autism,
additional needs and special challenges. It feels gloriously
important and beautiful to me, to be that person for a family, to be
there to see them, to see their connection, their bond and their
love. To be comfortable and relaxed enough that I react easily and
lightly to any difficulties that arise during a photo session, to any
uncertainty that comes in to play. I can give you that, the calm, the
fun, the seeing of who you are. And, more importantly, the capturing
of that.
This
is something I can give, that I love to provide, which has value far
beyond the cost of a session fee, or anything else. I can give a
family a treasure, which is not only an acceptance, but rather a
celebration of how wonderful they are. Real, flawed perhaps – as we
all are – but true and together and beautiful in that. It's
important, it's who your family is. It's your story. It's your
wonderland.
This
what I am going to do.
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